Connect
← Return to Patient Participant Study Phone Calls
Discussion
Patient Participant Study Phone Calls
Just Want to Talk | Last Active: May 4 2:30pm | Replies (8)Comment receiving replies
Thank you Colleen. Yes, it sounds like clinical research studies and a couple of my local hospitals have been mentioned when they called asking if I want to take part. It sounds legit, BUT, I'm skeptical as to how they got this info. When I am asked at a doctor's office if I would like to take part in a study, I always tell them "No".
I personally do not reply back to the call as a message is left on my answer machine asking me to call back if I am interested. They are specific about the medical issue by listing it for the study. My question is how do they know that I have that particular medical issue and how did they get my phone number?
Hugs & Blessings....
Replies to "Thank you Colleen. Yes, it sounds like clinical research studies and a couple of my local..."
Connect
This does not sound right. I'm pulling @stageivsurvivor into this discussion as he may have additional knowledge.
Clinical researchers or research coordinators cannot contact you without prior consent. Your local hospitals should not access your medical records and contact information for the purpose of clinical trial recruitment.
Typically clinical trial recruitment happens during a doctor consult. Your doctor may mention a trial for which you are eligible or for more general studies, you may be asked to participate through a questionnaire. This is always done with your consent and only you opt in to be contacted. Other options include clinical trial advertising through posters, ads, and social media posts. In each case, it is the patient who initiates the contact and consents to participation.
I recommend contacting the hospitals in question to report the calls and ensure your name is not on the call list. I'm very surprised that this is happening at more than one hospital.