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Patient Participant Study Phone Calls

Just Want to Talk | Last Active: May 4 2:30pm | Replies (8)

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@colleenyoung

@covidstinks2023, your medical information is protected by HIPAA and cannot be shared by your doctors and medical facilities.

There are many companies out there searching for participants to take part in research, some of them are for market research and can sound like clinical research. There is nothing wrong with market research, but people should be aware of who they are giving their information to. Is this to advance the market place or advanced medical study.

Clinical research studies have to be reviewed by a medical center's an Institutional Review Board (IRB). IRB is group that has been formally designated to review and monitor biomedical research involving human subjects. This group review serves an important role in the protection of the rights and welfare of the research participants. Included in that oversight are clear consent agreements. Read more https://www.fda.gov/about-fda/center-drug-evaluation-and-research-cder/institutional-review-boards-irbs-and-protection-human-subjects-clinical-trials

@covidstinks2023, are the phone calls you're getting random cold calls made to your number? Do they say how they got your number or where they are calling from?

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Replies to "@covidstinks2023, your medical information is protected by HIPAA and cannot be shared by your doctors and..."

Thank you Colleen. Yes, it sounds like clinical research studies and a couple of my local hospitals have been mentioned when they called asking if I want to take part. It sounds legit, BUT, I'm skeptical as to how they got this info. When I am asked at a doctor's office if I would like to take part in a study, I always tell them "No".

I personally do not reply back to the call as a message is left on my answer machine asking me to call back if I am interested. They are specific about the medical issue by listing it for the study. My question is how do they know that I have that particular medical issue and how did they get my phone number?

Hugs & Blessings....