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@debhammel

Good to know about the NSAID eye drops! I suspect my Collagenous Colitis (diagnosed last Fall) is the result of many years of NSAID use. . . . Did you discover any food triggers or is it just NSAIDs for you? I have had difficulty tapering off Budesonide and suspect food issues and am now gluten-free to see if the third attempt of tapering will be successful.

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Replies to "Good to know about the NSAID eye drops! I suspect my Collagenous Colitis (diagnosed last Fall)..."

I went off nsaid, ppi, ssri, and statin - and added them back one at a time. Ibuprofen was the clear culprit. But no food issues.

I know cause and effect is difficult to link but regarding your gluten question, I tried tapering three times without any luck. After an Enterolab test showed I had gluten sensitivity, I quit. After about nine months, I did a stool test with Genova that showed my Secretary Iga had returned to normal levels so I tried tapering again. I'm now three months in with no issues. So, after trying virtually everything (totally vegan, no medication at all etc,) I think gluten at the end of the day was the issue.

What was your course? Mine was:

9 mg/day for 8 weeks and then
6 mg for 2 weeks then
3 mg for 2 weeks then
off the medication