← Return to Starting Proton Treatments for Prostate Cancer: Any experiences?

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@jc76

@desertrat
Almost identical number that I had. 3+4=7 and a PSA of 3.75. Had PSMA, Decipher, and bone scan. All revealed that did not need hormone treatment as confined to prostrate and Decipher came back low risk.

I had 30 rounds of Proton Pencil Beam radiation at UFHPTI which is in Jacksonville Florida. I and my PCP opted to go there for proton radiations as Mayo Jacksonville did not have protron treatments just photon.

I had very little side affects. Had some slight fatique about 3 weeks in but did not stop me from walking, swimming or doing water aerobics. I did have more urgency to urinate and went more often. The at end has a lessor volume of urine flow. All these went slowly away after treatments ended. You will NOT feel anything during treatments so do not worry about that. I would suggest if you did not have the Decipher test to have it. It will more accurately define the risk level of your prostrate cancer risk.

On my follow up 3 month intervals I went from 3.75 to 1.9. Then to .90. then to .60. I have my year after treatment PSA test and follow up Appt. in July. My R/O said that goal was below 1 and that may take a year or two. I was below 1 6 months after treatment. Now the concern is that it remains low and there are no significant increases in PSA.

Good luck and let MCC know about your progress and any questions you have that we can give you our experience on.

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Replies to "@desertrat Almost identical number that I had. 3+4=7 and a PSA of 3.75. Had PSMA, Decipher,..."

PSA: 6.47 Gleason 3+3 2.5 months at Loma Linda Proton Center at the Loma Linda Hospital near Riverside, California in 2010. Post proton treatment with no side effects except some fatigue on Friday (played racquetball most days after 0730 treatment) .

2017 PSA began to rise to now 4.29 (some 14 years after proton radiation). Recent MRI indicates possible return; however, the original scan at Loma Linda indicated calcifications within and around the prostate. This can sometimes lead to issues outside a diagnosis of returning cancer.

I did sign in as a potential patient at Mayo one year ago. I would like to hear your experience, recommendations, or others as to your treatment. I have contacted Loma Linda with my complete file and awaiting some counseling on the options, if any. For example: how to absolutely affirm whether cancer has returned or not. Please include comments about UFHPTI. Thanks very much. Randall.Leesburg, Florida