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Peripheral Neuropathy life changing

Neuropathy | Last Active: May 23 10:17am | Replies (93)

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@njed

@orsons - Your symptoms sound very familiar to mine, started in one foot, then the other. My MRI did show stenosis and lower back issues "but not serious enough to cause the PN". Your other symptoms I can relate to, and Mayo did rule out autonomic. I am 9 years into this and at times, I think we all wonder which is worse, the numbness, pain, balance issues and many other symptoms or the way in which it impacts our lives. And it does! After going to 5 neurologists figuring, I'd get the cause of this as I'm not a diabetic, all I got was shrugged shoulders. So, unable to control the PN, I figured out some coping mechanisms which enable me to do what I can do, and I try not concentrate so much on what I can't do. I'm now in my mid 70's and continue to be as active as possible wearing AFO's due to drop foot and even with balance, my wife and I are doing a cruise in the fall. We all need to figure out how to live our lives safely despite we have PN. It's possible, keep positive.

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Replies to "@orsons - Your symptoms sound very familiar to mine, started in one foot, then the other...."

Sounds sadly too familiar to me. What are AFOs? All these abbreviations are new to me. Peripheral neuropathy has taken over my life in last two years. Now I have MGUS ? as well. I have zero balance as of about a year ago and several falls. I use my newly acquired walker “ almost” all the time. I greatly appreciate “Connect” as I am learning so much about this dreadful condition.