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Decided not to have surgery. What’s next?

Pancreatic Cancer | Last Active: May 5 11:48pm | Replies (44)

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@mayoconnectuser1

Many times refusal is related to insurance coverage.
1. start with insurance company and work backwards
2. Search for a physician who will support your decision for insurance to cover - be aggressive - search far and wide - tell them you will not take no for an answer

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Replies to "Many times refusal is related to insurance coverage. 1. start with insurance company and work backwards..."

I'm just gonna add: If there's an insurance company unwilling to pay for adjuvant (post-op) chemo, they'd better be willing to pay for monthly MRI and PET scans for at least a year, along with monthly Signatera tests and biweekly CA19-9 tests instead.

Although the idea of "Total Neoadjuvant Therapy" has some science to support it, I think more science will overturn that down the road. A lot of the "best science" during the first few weeks of the covid pandemic turned out to be a crock. Lobotomies and electroshock therapy were common treatments for mental health issues back in the dark ages as well.