Yes, it is scary. Waiting, making the decision. I have Nets. in both of my lungs. Very small, but did have small growth. I saw a Thoracic Surgeon who said mine our small, but one looks like it might have growth and he issued blood test. To see if there is any hormonal activity since l was suffering with Nets syndrome intensely. He said 6 month to do the CAT scan, if it shows any growth he would remove the one lobe that has baby nodules too.
Oncologist will follow, chemo. does not work on these nodules, radiation i.e. injection to control the Net. Syndrome and to help get my immune system boosted.
I am comfortable with these three, but will see Surgeon at Dana|Mass. General for his opinion on my nodules. My UMASS. pulmonologist had to get radiologist to correct two elements of a lymph node under my arm was not notes lite uptake, along with another nodule in my right upper lung ,small. I told l was mad l had to have a Fellow Doctor and he discovered it. So, second opinion l will go 5/15 Boston.
I was advised walking great, no lifting weights. Doing Yoga relaxes your breathing.