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@welshmark

Hi Lori
It’s been a steady decline since October, 1.4 in October 1.4 end of December and now 1.1.
They do test me for cmv and ebv as I had both at low levels for a year or so after transplant.
Maybe I’m worrying too much but they have been very stable for a few years . My doctor seems happy to wait for 3 months for the next blood tests so I suppose I must trust the doctors .
Mark

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Replies to "Hi Lori It’s been a steady decline since October, 1.4 in October 1.4 end of December..."

Hi Mark, After what we go through with AML and the bone marrow transplant, I think it’s pretty normal to feel that twinge of unease when we see our blood numbers fluctuate or trend in a wrong direction for a bit. About 3 years ago I had a similar event that went on for a few months, to the point of requiring a bmbx. There was nothing amiss with bone marrow or blood. Seemed to be an anomaly that self corrected a few months later. Left us all scratching our heads.
With your bloodwork every three months that’s a pretty good indication that your doctor isn’t too worried about any rapid progression, which is the right approach. I’ve realized from the get-go that my transplant doctor is very level headed with no knee-jerk reactions. I think these doctors see so many variations in chimeras because all of us are unique, they’ve learned to ‘wait it out’ before making any decisions.

Since you’re new to the forum you may not have seen these. But a few years ago I started a couple of discussions for bone marrow transplant members to share their story. Would love to have you jump into some conversations with the rest of us! Here are links to two sites.

~My Bone Marrow Transplant Story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours

~Snapshots of hope: Life on the other side of transplant. https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

There’s also a third discussion about GVHD

https://connect.mayoclinic.org/discussion/chronic-gvhd-lets-talk-about-it/

Do you have any chronic gvhd issues?