← Return to 2 year struggle to get off prednisone still hard to get from 3 to 2mg

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@daveycarls

I am an 83 year old male, always healthy, not quite done fighting off whatever we call this stuff for 4 years now. When my front body muscles all wanted to kill each other at Christmas 2020, nobody in Florida had a clue and I lost 25 pounds. I accidentally found a pickleball friend in upstate Michigan had gotten the same stuff but wasn't sick anymore and he said: "It is PMR". My old heart/general family doc had heard of PMR, and she said she saw two cases a year. // Previously in 2008, I had a "CABGX5" after I passed out 30,000 feet over Dallas- not much damage, no real problem in recovery: I have been playing uniformed softball with my geezers for 9 years//. My temporal artery biopsy operation showed no giant cell artheritis but my body muscles continued fighting each other, meanwhile COVID hovered and defeated my masks once and not bad because of my Pfizer shots. Also about half of my softball geezers got pink feet with painful swollen toes last winter!! I had cut my use of Prednisone, initially 20 mg, quickly reduced to 10mg, then slowly to 5, and finally down by 1 mg per day over time, until I was off this steroid. I was on steroids with PMR FOR APPROXIMATELY THREE YEARS. My chest muscles are still way weaker than normal, (rt. rotator cuff still damaged= be careful). but the steroids are done!! Also I ride a bike hard for 20 min/day. All pain has gone way down. My lovely wife has read this, and mentions she has heard of people getting PMR relapses for various reasons. Signed, Geezer after PMR.

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Replies to "I am an 83 year old male, always healthy, not quite done fighting off whatever we..."

Welcome @daveycarls, That's great to hear that you have gotten off of the steroids for PMR. I'm 81 now and have had 2 occurrences of PMR. My first one lasted 3 and half years before I could taper off of prednisone then it came back 6 years later and I was able to get off of prednisone in 1 and half years. Knock on wood, I have been PMR free now for 6+ years but not without some of the old guy pain from my degenerative arthritis in my joints and spine. Still I'm feeling lucky the PMR hasn't come back.

Have you made any changes in your diet to help keep the PMR at bay?