I am very new to connect so I think I responded to you a few minutes regarding a question you asked however I just realized I didn’t see your full post . Thank you for sharing there is so much confusion and conflicted info on determining MS . Spinal tap was done on me as more or less to confirm MRI’s and evoked vision testing and others.
From 2015 I have been diagnosed and treated for MS and GBS.
Two neurologist diagnosed Me with MS
One told me after another MRI w/o contrast (usually w and w/o were done) no exam of any kind not even then mental, physical standard for brain and nerve conditions. Just said mri was abnormal and could be from a variety of reasons he was the head neurologist for MS .
However , spinal tap from 2016 or to order current one which is a test done amongst MRI, evoked vision test and more.
When Mri is abnormal and patients symptoms need to be further tested. I need by last MRI and a new imaging MRA still abnormal mra should what is considered nothing nothing size aneurysm . Some vascular issues.
I became so mentally exhausted and the GBS seemed to be just something I said, but no concern or questions it’s like 6 months of intravenous plasma treatment which I believe as did my pcp landed be in hospital due to the dr.’s lack of concern or advised by nurse giving me ivig to pause a couple weeks when my veins needed heat and other things in order to find them on either arm, when my blood pressure kept getting lower with each treatment I spent more time afterwards in bed. Became anemic , developed ulcer, pneumonia , bleeding internally , blood transfusion
She was getting $3,500 each infusion from my insurance co.
Greed not my well-being took priority . All that and GBS was a note in my chart period. I had spinal surgery and still need neck surgery. Had fibromyalgia years before the journey with my brain.
I stopped seeing neurologist or other necessary specialist for thyroid , body over run with arthritis and on.
I took 3 + years being beat knocked in walks as a young teen mom and wife is there a connection to my brain and neuropathy to MS
I don’t know where to turn