Connect
← Return to Anti-Dppx Autoimmune Encephalopathy
Discussion
Anti-Dppx Autoimmune Encephalopathy
Autoimmune Diseases | Last Active: May 3 6:09pm | Replies (9)Comment receiving replies
A couple more things. When I got out of the hospital I weighed 88 pounds. I have trouble with the sun and lights. Have you ever been told how your daughter got this? I am going to start a research program at Mayo, they are going to put electronic pads on my legs to monitor my gait and balance. It has no benefit for me, they are trying to get information for MS patients. I also got a call from my gastroenterologist and he started during research on DPPX and is having someone contact to do a research paper on me. Where do you live and what are your names?if that is ok. Thank you
Replies to "A couple more things. When I got out of the hospital I weighed 88 pounds. I..."
Connect
@uncledrew @dppxmom If you wish to share names, addresses, phone numbers, please use the Private Messaging. Connect is a public site and we want to protect all members.
To PM, go to the top of this page and click on the ‘person’ drawing. You will then see, on the left, a place to click for private messaging. Let me know if you have any problems.