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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)
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@sarmi67

Hi. My name is Jeannie. I just found out too. They found my tumor during an endoscopy. Mine is in the duodenum by the pancreas. stage 1. They plan to remove it. Meeting with the surgeon soon. Waiting for the appointment. I’m trying to remain calm but honestly I have so many questions.

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Replies to "Hi. My name is Jeannie. I just found out too. They found my tumor during an..."
Turkey | @tomrennie | May 3 12:25pm

Hi Jeannie. You are in the right place for questions. Take a deep breath and ask the three questions that scare you the most. There are no dumb questions. The amazing folks here will share their real life experiences with you.

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Colleen Young, Connect Director | @colleenyoung | May 14 4:15pm

Hi @sarmi67, I echo @tomrennie's and @kim1965's welcomes. I'm also inviting @hopeful33250 into this discussion. I believe her NETs was also found in the duodenum.

Good news, your tumor was discovered at an early stage. Have you been able to meet with the surgeon? How are you doing?

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Teresa, Volunteer Mentor | @hopeful33250 | May 14 8:56pm

@sarmi67 Hello Jeannie and welcome to the NETs support group on Mayo Connect. I can understand what you mean when you say that you are trying to remain calm, but you have so many questions. I was in the same situation in 2003 when my NET was found in the duodenal bulb. I had never heard of this type of cancer and had no symptoms. I was having a routine upper endoscopy for GERD when this was found.

Prior to your meeting with the surgeon, I hope you will make a list of questions. It would be good to inquire about the types of surgeries that are available to remove the NETs. I had two invasive surgeries in 2003 and 2005. When a recurrence was found, I went to a university hospital system where they did a surgery through an endoscopy procedure as an outpatient. My lesions were quite small, but at that time I was not seeing a NET specialist and it was not staged.

Prior to the endoscopy were you having symptoms or digestive tract problems?

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