I too suffered for years not knowing what was wrong. Similar symptoms and every neurologist said there was nothing wrong. I had one more neurologist to go to and he said there is definitely something going on either Lupus, MS or HNPP. This was in 2000. So he ordered genetic testing which came back showing HNPP (Hereditary Nerve Pressure Palsy) a very rare neurological condition. I had the same problem with my legs and hips and at one point could not even use my right leg to climb stairs. Then started dealing with pain management for nerve blocks and trigger point injections, which helped with that situation. Well things got worse. I had flu like symptoms in 2011 and my entire body was in severe pain - muscle and nerve. My neurologist said it wasn't from the HNPP, so sent me to a Rheumatologist in UCLA and they couldn't figure it out, was told maybe Fibromyalgia or Polymyalgia Rheumatica???? He wasn't sure either. OMG! I knew it was not one of those. As time went on things got worse. I started getting symptoms of sweating, nausea, vomiting, forceful bowel movements, frequent urination, blurry vision and passing out! No one could figure it out. They sent me to cardiologists- had all the test looking for POTS and nothing. She suggested to see GI to rule out Neuroendocrine tumor. So after seeing GI and nothing, sent to Endocrinologist and all the test again were negative. But my Endocrinologist suggested to get a second opinion for GI. She wasn't comfortable with the results from the first one. He just said you have heartburn and a little inflammation of the stomach take some over the counter meds. Well, the symptoms continued and became worse. Every day waking up sweating, nausea, sometimes vomiting and running to the bathroom. I also have been suffering with severe and I mean severe neck, shoulder and upper arm pain and right hip, leg pain, especially in the knee and calf muscle. Nothing was taking that pain away even tried morphine and did not do anything. It was horrible and I could not function or sleep. Lost so much weight - down to 100 lbs! I was getting very depressed. In the past 6 months went to see a new GI doctor who was very concerned with my symptoms. So he did an endoscopic ultrasound and found a few nodules on my pancreas, non cancerous, not invading the ducts and will do 2 year follow up for that. Then he ordered a Hida Scan for the gallbladder. This is what changed my life around. They give you a tracer through IV and then the last 30 minutes a hormone CCK (Cholecystokinin) also IV which activates the gallbladder making it think you are eating. (results normal) Well when I got off the table my pain was completely gone!!! This was on 4/5/24 and I'm still pain free and no GI symptoms. So I did some research on CCK and found CCK was used in a clinical trial for chronic pain and its role in peripheral and central circuits in chronic pain. That was found in the Neruobiology of Pain published 5/5/22. So I went further and wanted to see what stimulates the brain to release CCK and it's the Vagus nerve. Now, if your vagus nerve is damaged it will cause severe pain in the neck shoulder and upper arms, calfs plus multiple GI problems. I also found that the Mayo Clinic is doing a Clinical trial on the Effect of Cholecystokinin (CCK) on Gastroduodenal Activity in Humans. So there is something with this hormone and vagus nerve that causes multiple problems because the vagus nerve runs through the organs and sends signals. I see my Endocrinologist on 5/10/24 and she is very excited about this and my GI doctor asked me for my notes! Sometimes you have to be your own advocate and do your research because you are the one dealing with all these symptoms. I know my vagus nerve is damaged. I've had multiple car accidents causing whip lash, the flu in 2011 and surgery which can cause damage. I had my appendix removed and a complete hysterectomy in the past. So since you had a C-Section, I'm not saying it happened, but maybe your vagus nerve was damaged. I would definitely bring this information to your doctors, especially the Neurosurgeon. I know what it's like dealing with sever chronic pain and no answers from the doctors. Not one even thought of the vagus nerve, even though I had every symptom of vagus nerve damage. Now they are suggesting to see a neurosurgeon. To me, having the Hida scan was a miracle! If the first GI doctor had ordered it two years ago I would not have had to suffer for another 2 years. I also contacted the GRIN (Global Registry of Inherited Neuropathies) and the genetic counselor for CMT (Charcot Marie Tooth Disease for which HNPP falls under) and both responded and wanted so much information from me on how and where I found my information and what I'm doing for the vagus nerve. Actually, one is calling me this weekend to discuss all of this. I think we are on a good path regarding chronic pain and ongoing GI symptoms. Please do not let them diagnose you with Fibromyalgia. One doctor told me that is the waste basket diagnosis. If they can't diagnosis you they just give you a diagnosis of Fibromyalgia. Again, please speak with all your doctors and ask a lot of questions. Be persistent! If they don't listen move on to a new doctor. Keep a journal. Google how to stimulate the vagus nerve how it can be damaged. I stimulate it every day with mediation deep breaths,I spray lavender around, foot reflexology, body massage, massaging the sides of my neck and the ears, especially the left. I hope this will help you. You have nothing to lose if you try and please never give up. No one understands the pain you are living with except you! And DO NOT let them tell you to get counseling because they don't have answers. It's not in our head it's in our body! Good luck. You need to be able to take care of your children so do whatever you can. My best to you.