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← Return to Myasthenia Gravis post COVID
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Post-COVID Recovery & COVID-19 | Last Active: Jun 23, 2023 | Replies (15)
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Yes. You did respond before and were incredibly helpful. I am not sure whether to hope she has MG or not. It’s not a great disease to have but at least it’s a diagnosis and there are treatments. I am skeptical because she doesn’t have some of the classic symptoms such as eye issues, trouble swallowing, etc, but she does have on and off again extreme muscle weakness that lands her in a wheelchair and it has been getting worse rather than better. I will keep toy posted on the results and I hope that you can find some relief and answers to your own struggle with long covid.
Best.
Replies to "Yes. You did respond before and were incredibly helpful. I am not sure whether to hope..."
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There are different types of Myasthenia Gravis.She might have Generalized which does not have any eye issues.You should tell your Mom to ask her Doctor to check for seronegative MG too.That should rule out MG that does not show up in the bloodwork.I think covid can bring on alot of autoimmune diseases.Was your mom checked for Lupus and Sgrogrens Disease through a Rhuematologist?I knew Lupus could cause issues walking,but I thought Sgrogrens only caused dry eyes and mouth.Apparently Sgrogrens can cause muscle weakness and walking issues.There is also a disease called LEMS.I would tell your Mom's neurologist to check for that as well.Has she had an EMG or muscle biopsy?I had one abnormal EMG and one negative one so now my neurologist is sending me to a whole neuromuscular team.They just can't figure it out.I feel bad for your mom.I hope they figure it out soon.It has been 2 1/2 years with no answers for me and I was pretty much perfectly healthy.I am in my 40s and exercised all the time.I had to quit my job and move in with my parents.I would never imagined I would be in this situation.I am sure your mom feels the same way.It is so frustrating.