Hello!I think I sent you a response on another message you sent out about your Mom.I have alot of symptoms of Myasthenia Gravis as well.Trouble walking,slow talking,swallowing,and weakness in the face.One Doctor checked me for Myasthenia Gravis and I had one antibody for that specific test that was borderline,but labcorp did more testing and said it was nothing.I had a Neurologist check for seronegative Myasthenia Gravis and that test came back negative.I think it is possible to have Myasthenia Gravis and it not show up at all in the blood.Myasthenia Gravis is one of the Diseases that can come on after Covid.The drug mestionon that is used to treat Myasthenia Gravisvis being used at Long Covid Clinics now to see if it helps patients with muscle strength.Mestinon gets the signals between the muscles and nerves functioning properly.Steroids can be used in treating MG along with infusions as well.I wish I could try mestinon just to see it would help,but doctors are hesitant unless you have a positive test.

Yes. You did respond before and were incredibly helpful. I am not sure whether to hope she has MG or not. It’s not a great disease to have but at least it’s a diagnosis and there are treatments. I am skeptical because she doesn’t have some of the classic symptoms such as eye issues, trouble swallowing, etc, but she does have on and off again extreme muscle weakness that lands her in a wheelchair and it has been getting worse rather than better. I will keep toy posted on the results and I hope that you can find some relief and answers to your own struggle with long covid.

Best.

Thank for you all of that information. She had an EMG about 4 years ago which showed some peripheral neuropathy but she will likely go for another one and I would like her to see a rheumatologist.

I am sorry to hear how much you are suffering. You certainly seem to be doing everything you can to advocate for yourself.

One long covid doctor suggested taking Luvox to see if that can tamp down inflammation so I think she may start that. There seems to be some evidence about SSRIs helping with that. There is also the option to take a longer course of Paxlovid to to try clear any lingering virus.

Wishing you all the best of luck and good health in your future.

This week, my neurologist is testing me for MG through a specialized EMG. I have had Long Covid for 3.5 years. I had a 5 month reprieve with Mestinon. I thought that was my ticket to normalcy. However, about 5 weeks ago, I started having LC symptoms again. It has gotten worse since then.....SOB, dizziness, lack of balance, brain fog, legs like jelly with a little tingling, PEM, etc. Feeling discouraged. I'll keep in touch on this thread. Good luck to your mom, Hopefully.

I developed ocular myasthenia gravis after my second Covid vaccination I did not have Covid just got vaccinated twice. ( I think I am up to 5 now) Shortly after that second vaccination I awoke and one of my eyes was only half open. My ophthalmologist suspected OMG anne sent me for the blood test and I was positive.
At the time, a low-dose of prednisone and just one mestinon per day seemed to bring me back to normal
Recently, I have seemed to develop some generalized MG with lung issues. I am up to 20 mg of prednisone and three or four mestinon per day and still do not feel normal. I am in favor of vaccines, but I do wonder if that triggered this
When I asked my neurologist, she said, what does it matter how- you have it.