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Encouraging hope: Meet @lbrockme Sep 18 8:08pm | By Teresa, Volunteer Mentor (@hopeful33250)Comment receiving replies
I have been searching for this type of encouragement since January when my husband was diagnosed with multiple myeloma. Yesterday we learned he is resistant to standard chemo and he begins a new round of meds on Monday .
I feel socially isolated because I do not want to subject him to outside germs that would affect his immunity. After six months, people who showed initial signs of “being there “ are fading. They didn’t think it would be such a long haul.
Replies to "I have been searching for this type of encouragement since January when my husband was diagnosed..."
Oh, I so sorry to hear this. Welcome to Connect. Most of us really do " get it"! I remember during the height of Covid someone was asking how we were doing with the isolation... we thought , this is nothing new here for us. It's been our life off and on for years.
I found that media like this did allow connection. I also learned that I needed to reach out on occasion. That wasn't my comfort zone , and illness makes me want to isolate more , so I had to work on it.
We used to take long drives to get out of the house and see new scenery . Experiencing the wonder of creation , that awe , always put things in perspective for me.
Are there any fun things you enjoy together , that you can still do? It might take creativity!
I hope this weekend is a time of peace for you before the start of a new regime on Monday. In my prayers !
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Welcome to Connect, @rffreyberg. I know it’s not easy when you or a loved one is diagnosed with a conditions that changes the normal way of life. I’m one of those people too and it can feel socially isolating when trying to remain safe. However, with proper precautions such as wearing N-95 masks, avoiding larger crowds or even smaller groups in tight spaces, lots of handwashing or hand sanitizer, etc., we can live a fairly normal life.
We have a number of members in the forum who also have MM so you’ve come to the right place for support, encouragement and hope! I’d like to introduce you to @gingerw who is a fellow mentor in Connect, along with @vera101 @ranger358 and @heathermcfarland who share their experiences in this discussion. Feel free to pop into the discussion!
https://connect.mayoclinic.org/discussion/a-summary-of-my-multiple-myeloma-journey/
I hope your husband does well with his new round of meds coming up on Monday. What was the previous treatment plan that wasn’t working for him?