Would you get a second opinion? Twitches and spasms

Posted by robs4848 @robs4848, May 1 4:04pm

Hello!
I am a 40 year old female. In September I woke up one day with a sore left calf. I don’t work out and hadn’t slept funny. So that was strange but I let it be. It stayed. I told my doctor after it didn’t leave for 8 weeks and was painful and annoying. I waited 8 more weeks for a referral to a neurologist (the pain still present, along with cramping).

The neurologist spent 10 minutes with me. Checked a reflex on my knees and under my feet. Asked me what I was worried about. I told him a neurological disease with motor neuron issues. He laughed and said “no you don’t have als”. I asked him how he knew and he said “because of how you walked in here and how you are seated”. Then he said it was anxiety.

5 months after my initial cramping in my calf (which has continued) it has also climbed into my quad and groin and is incredibly painful. I have seen a chiro, physical therapist and massage therapist and they all say my muscles are incredibly tight on my left leg.

But…as of a month ago my left bicep also started to hurt and now I have a tremor in that arm. When at rest it’s not there but it is if I put my hands out. It is a visible tremor and my bicep muscle is a hard rock. I have done dry needling, massage and cupping and nothing helps.

This is all happening on my left side and I’m starting to get worried. It’s affected my gait, my sleep, my mental health (I’m becoming anxious) and my quality of life. I’m annoyed my neurologist didn’t do a single test other than his initial assessment. Should I ask for a follow up? My legs burn from being so tight and cramping and the arm shaking is worrying me as well.

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@robs4848
Did you fall of injure it in some way?
Inactivity can cause muscles to hurt. How active are you? Have you tried stretching, leg exercising walking. Can't hurt and may help.
There are vitamins and minerals deficiencies that can muscle issues. Maybe ask your doctor for a vitamin & mineral profile & a vitamin D test to rule out deficiencies.
Take care,
Jake

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I would certainly seek out another opinion. Another option is to go through the ER. Some doctors seem to put too much weight on what they see on the outside, you are young, you walked in on your own, and you appear healthy. Illness has no age limits...you continue to decline and worry. Please seek care from someone who will take your concerns seriously.

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Yes, yes, yes. Always get a second opinion. I did so 25 years ago and it saved my life.

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I had similar symptoms last year when I arrived at my neurologist office. I had seen him for some muscle issues around 15 years ago, He mentioned it. This time it was for suspected neuropathy and body wide fasciculations.

He did the same exam you describe, but also ordered blood work, EMG and MRI. He reassured me I was ok, after the exam, but I still had the tests. Eventually, he prescribed me meds for depression and anxiety, that I take on a needs basis. And, my twitches suddenly left. Recently, I had a very stressful situation and a twitch started in my right arm! You could almost see it jump! I knew then, it was anxiety that caused mine.

The EMG neurologist told me on spot, it was not ALS. I’ve been in talk therapy and it helps a lot. Still got tennis elbow, but that’s almost healed. The neurologist told me I was a healthy woman! I’m trying to go with that. Lol. I do have post covid syndrome, but not some of the neurological conditions I suspected. I thought I had Bradykinsea. (PD)

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@robs4848 I would surely seek a second opinion from a different doctor. If you can look up their reviews, you might find ones who aren't dismissive. I can't imagine how terrible your pain and muscle issues must be.

The ER suggestion could be a good idea. I'd recommend that before you go, you write out a timeline of the progression of the symptoms.

A similar suggestion would be to see a physiatrist. They have a more holistic perspective than a specialist who can't see outside their particular box. My wife is gradually reaping the benefits of seeing a physiatrist recently who referred her to a doctor that could treat what he thought was causing her such pain. With a nerve ablation her pain is decreasing and she's getting her life back.

Maybe a neurologist isn't the best specialist for your situation. I can't tell you what doctor would be most likely to be able to diagnose the source of your problems. I do hope that you find someone who listens to you and believes that your symptoms are real.

Jim

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I'd skip the ER...the physician can only address the symptom you are presenting with then do a referral. I would look at the closest medical centers near you and begin working on getting a referral......meaning Jon Hopkins, Cleveland Clinic, Temple and always the Research Triangle in North Carolina. Being dismissive is easier than admitting you don't know, but Dr are trained, or should be, to do differential diagnoses - figuring out all the things it could be then start ruling out disease process thru diagnostics. You may even be able to self refer and just call for an appointment yourself. Look at the credentials, where the Dr was educated, years of experience, publications and research that they might be involved in. It's often better to select a physician who has done medical school, residency and fellowship at different educational facilities. But of course, no amount of education can teach empathy, compassion and sincere concern for their patients. I think that is inherent!

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Any time a doctor says that a physical pain is anxiety or "in your head," that is a huge red flag.

True psychosomatic illness is EXTREMELY rare.

Now stress and higher stress levels can, indeed aggravate an existing problem. But cause one? No, that kind of thing is extremely rare.

More likely it means the doctor thinks it is minor and will go away on its own, and he doesn't want to deal with it.

They will do that sometimes.

It is completely obnoxious, unprofessional and can be dangerous.

When folks deviate from just telling the simple facts, it can cause all sorts of problems.

Some doctor who thinks we are four year olds, who have to be babied or something, has really not a lot of insight into actual human behavior.

So, if you get one of those lines from a doctor, yes, definitely get a second opinion.

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I just wrote one comment about getting a second opinion.

Now I am commenting upon the symptoms you mentioned.

From what you are saying, this sounds quite serious.

You absolutely have to find out what is going on.

The progression into other areas of the body is the greatest concern to me.

++++

from The Cleveland Clinic:

"Severe muscle cramps all over your body could indicate an electrolyte imbalance or a serious underlying medical condition like atherosclerosis, thyroid disease or multiple sclerosis (MS)."
https://my.clevelandclinic.org/health/diseases/muscle-spasms-muscle-cramps
++++

Now, if you are one of these folks who really, really, really does not hydrate well, at all. Now, that could be a minor thing that is blowing out into these major symptoms.

Everyone should really get those 8 glasses of water and every single day.

If you are one of these folks who goes very very low on hydration, that alone could probably cause these things.

By that I mean, someone who regularly is drinking, say, only 4 glasses of water daily...or less. That kind of thing.

Then, into electrolytes. If, for some reason, you have some kind of very unusual diet, where you do not get enough electrolytes, yes, I think that alone could cause these kinds of issues.

But it would really have to be at a more extreme level. You almost never eat a fruit or a vegetable...things like that. You can go a full week without eating a single piece of fresh fruit. Things like that. You never eat leafy green vegetables...that kind of thing.

With any profound symptom, ANY change you make, should be run by a doctor. So, if you have not been hydrating near enough, you really have to discuss that with a doctor. Oh, you know, he may say you have to hydrate more, but don't jump from what you are doing to those 8 glasses a day. Maybe you have to do some gradual increase or something.

Same with electrolytes.

Now, if you have been hydrating plenty and getting plenty of electrolytes....that is another thing entirely.

A weirder possible cause, could be some problem in your environment. For example, there is, in fact, a natural gas leak in your home, or a higher level of carbon monoxide...or there is some kind of high level of industrial grade cleaner that is seeping into your home.

So, there are some environmental problems that could be ruled out.

Oh, you know, the downstairs neighbor is an exterminator and he is leaving industrial grade pesticides around and it is getting into the air you breathe. Something like that.

Now, if you rule out hydration, electrolytes and environmental causes?

Then, I have to say, you have to rule out some major illnesses. I don't know enough to know which ones to test for, but I know of people who have had undiagnosed illnesses...and that is one thing they do...they just go through a list of all the possible medical problems and get them ruled out. Oh, things like M.S., Cystic Fibrosis, Myasthentia Gravis, Sclaroderma.

I only know that people in my support groups went through a list of things. I don't know what they entailed. I am just trying to give you some ideas of possibilities.

The Cleveland Clinic article indicated some of them:

"atherosclerosis, thyroid disease or multiple sclerosis (MS)"

I have a range of serious medical problems. Have been in many support groups, since 2004. So, am familiar with folks who have a range of illnesses. Thought I would pass along what I could...

very sorry about the difficulties. Take care now.

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YES. get a 2nd, 3rd or whatever you need. when a sexist doctor says " it's anxiety. run as fast as possible and as far as you can. doctors like that make me physically ill and MAD. he's saying it's ALL IN YOUR HEAD. your a hysterical woman. myself, i'd punch his lights out. anxiety my foot. daniel 🏳️‍🌈

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@danny5

YES. get a 2nd, 3rd or whatever you need. when a sexist doctor says " it's anxiety. run as fast as possible and as far as you can. doctors like that make me physically ill and MAD. he's saying it's ALL IN YOUR HEAD. your a hysterical woman. myself, i'd punch his lights out. anxiety my foot. daniel 🏳️‍🌈

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Yup, exactly. Totally with danny5

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