← Return to Starting Proton Treatments for Prostate Cancer: Any experiences?

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@scratssun

I had proton beam at Loma Linda 15 years ago. Until March 2024 I too was a cheerleader for having proton beam. My life was wonderful in almost every health manner. In March 2024 my urologist (who is a prostate SURGEON) blasted a large kidney stone and then inserted a stent between the kidney and bladder. Two very uncomfortable weeks later the stent was removed and immediatly followed by an excruciating infection requiring hospitalization. Four weeks later the dr. did a procedure to view the kidney and urethra. Upon returning from the procedure, I was taken by 911 to the hospital with Sepsis and Pseudomonas. At this point a nephroscopy or a urethra bypass using the small intestine was considered OR, he said "live with it." According to the urologist surgeon, proton beam radiation caused these issues and he said there are no other choices for relieving the urgency every hour, Bottom line--I still consider myself an extremely active, healthy 82 year old and would do the proton procedure again as I did 15 years ago.

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Replies to "I had proton beam at Loma Linda 15 years ago. Until March 2024 I too was..."

I just had Proton Therapy at UFHPTI in Jacksonville. While there, a couple of guys came by for their 9 and 10 year checkups. Both had no issues. You should call Loma Linda and speak to their Urologist/Oncologist about this. The one thing we were cautioned about was to have any urologist contact the Proton Therapy doctors before probing around in rectums or urethras. Also, you've gone 15 years without problems and I doubt the kidney stone is the fault of proton therapy, but I would give Loma Linda a call. They were the pioneers in Proton Therapy.