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Neuropathy: What works and what are scams?

Neuropathy | Last Active: 4 days ago | Replies (407)

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@northoftheborder

My neuropathy is weird because I suffered nerve damage both from from the cancer lesion on my thoracic spine and from the emergency surgery to debulk it.

I was on Lyrica (Pregabalin) for a couple of years — which did make a big difference when we finally got the dose right — but then I decided, in consultation with my medical team, to titrate off it because I already had weight gain as a side-effect of my primary cancer meds, and I didn't want to compound that with Pregabalin and end up dealing with type 2 diabetes as well. It took three tries over more than a year.

Now, my body and brain have learned to ignore or block enough of the nerve pain that I can just live with the rest. When it flares up I take a Tylenol — Ibuprofin is contra-indicated with my main meds — but I try not to do that too often, because it seems to become less effective the more often I take it. Staying active also seems to help (the pain, of course, says "Stop!", but if you can move through that, it seems to diminish a bit).

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Replies to "My neuropathy is weird because I suffered nerve damage both from from the cancer lesion on..."

My Axonal Neuropathy is so Severe I’m told there is no help. I do believe my US military did this to me. I don’t believe in any of those Scams out there I have been in concise severe pain prior to 2003.
VA has been trying in surgeries implanted a spinal cord stimulator. Now the pain is getting worse and the only way I’m able to get around is in a wheelchair. I hear some people say they have wonderful success from the procedure.