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Ive been struggling with extreme pain for about 2 years. Feels like its in multiple teeth but after anywhere from minor dental work to root canals, Re root canals to extractions I'm told it's not my teeth. Having all these things done not only dident help but made my pain at a level 9/10 day in and day out for about 8 months. I'm told atypical odentalgia but also Trigeminal neuralgia is what I have however I did not suffer to this extent prior to dental work. Ive tried a few different meds for nerve pain but nothing seems to help at all. Ive had to take multiple trips to the ER because my top BP number has hit over 200's from the pain severity. I'm starting to lose hope and very afraid there will be no relief. I'm at breaking point. Has anyone gone through this kind of pain.....what helped? I've gone in for my first Trigeminal nerve block and was ok for about 3 hours and then the pain came back. I noticed at Mayo Arizona where I'm at that they might have a pain rehab inpatient clinic and wondered if anyone has used it or if someone like me would be accepted. Than l you for any advice
Replies to "Ive been struggling with extreme pain for about 2 years. Feels like its in multiple teeth..."
Hello @deneenm, I would like to add my welcome to Connect along with @jesfactsmon, @amandajro and other members. You mentioned Mayo Clinic Arizona. Have you considered seeking help there? It looks like they have an excellent program - Trigeminial neuralgia care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/care-at-mayo-clinic/mac-20353351
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@deneenm
Hi, welcome to Connect. That sounds excruciating! Have not dealt with chronic tooth pain personally but know that any tooth related pain can be hell! What kinds of pain meds have you tried? My wife's peripheral neuropathy is bad but she is managing, mostly with marijuana and occasional use of kratom, which is a leaf from SE Asia. Her pain is pretty much constant but the marijuana allows her "breaks" of a few hours here and there. That would not be to good if you have to go to work however. Are you able to get decent sleep or is the pain getting in the way of that? Good sleep/rest is crucial in dealing with pain.
As to the Mayo Pain Rehab Clinic, one Connect member, Rachel @rwinney, recently went through it at the Jacksonville Mayo site. She is currently working on herself using the techniques they taught her. Here is a link to a message she posted about it after she finished the 3 week session: https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/?pg=2#comment-452117
She told me recently that she still has her pain as before but that she now has tools to help her manage it better. Here is the website for the PRC: https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Good luck to you on finding answers for yourself. I hope your experience interacting with others on Connect is a positive and useful one for you. Best, Hank