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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@paulamacmorgan

My brother has suffered from this extremely painful facial/brain disorder for years. He went through surgery approx 6 years ago and has managed quite well UNTIL NOW...the excruciating pain has returned and he’s about to give up says he will not live this way again! I’m desperately searching for answers and options for him. Anyone with information would be most helpful. thanks

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Replies to "My brother has suffered from this extremely painful facial/brain disorder for years. He went through surgery..."

Hello @paulamacmorgan, welcome to Connect. I see you also started a conversation wondering if anyone had been treated for this condition at Mayo Clinic. Has your brother received an appointment already at Mayo Clinic, or are you still in the process of gathering information and hoping to seek an appointment? If you are comfortable sharing, what surgery initially helped your brother? Here is a bit of information on how Mayo Clinic treats trigeminal neuralgia, https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/diagnosis-treatment/drc-20353347. Has your brother tried some of these treatments other than surgery?

@paulamacmorgan - I'd like to add my welcome to Mayo Clinic Connect. @jennheadlee @vickylynn @kim_o @annpie88 @jmjlove @carmelo1morrone may have some suggestions for you and your brother from their own or a loved one's experiences about controlling the pain from trigeminal neuralgia. Perhaps they can also share whether they or anyone they are aware of has had surgery for this condition and then had it come back to be very painful again.

How has this weekend been painwise for your brother, paulamacmorgan?