@pb50
I live in New England and could get to doctors in Massachusetts, Rhode Island and Connecticut. Finding a good rheumatologist is really challenging so thank you for offering to help me! I believe having Epstein Barr Virus/mononucleosis as a teen, small fiber neuropathy, autoimmune antibodies for Hashimoto’s, Antiphospholipid Syndrome, and SLE, etc. is wrecking havoc on my heart, lungs and brain. Not like having severe congenital spinal canal stenosis in my cervical and lumbar spine and degenerative disc disease/myelopathy and radiculopathy wasn’t enough!! I have so many symptoms and diagnoses/test results that I am having a hard time keeping everything straight! Since doctors have not been really helpful up to now, I want to really try to narrow down my focus on calming my immune system and inflammation, getting some gentle exercise for strength and flexibility, improved nutrition/diet, good sleep, self care, etc. The stress of dealing with the broken healthcare system plus wasted time/money/emotional investment is worth it and it is not providing a good return on my (and most patients’) investment.