@tinae you're welcome. I was also 58 years young when I was first diagnosed!

The brain surgery was to remove the cyst in my left parietal lobe which controls muscles on my right side and coordination between the two sides. I didn't recognize the "mini seizures" as such because we had just moved. In my mind, I would work out, move boxes and furniture, and have muscle spasms the next day. I didn't think anything of it at the time. Today, I'm still doing PT to recover muscle tone and eliminate manageable pain.

Yes, I still get scans every 3 months, including a brain MRI, CAT scan, and blood tests. I've convinced my imaging center to schedule them all together so I only get poked once.

I did have a recurrence in February when there was increased activity in the area where the cyst was removed. My radiologist and oncologist consulted and agreed to give me one more round of radiation to kill the newly active region. Their theory is that the original brain surgery and radiation missed a few cells that took 3 years to grow large enough to be detected because I'm taking Tagrisso. The one round of radiation had no side effects at all.

Best of luck in your meeting today! I've started a Note on my phone for each of my doctors where I can record a question when I think of it. The first time, I forgot to look at my notes before the meeting, but I've got it down now! Have a good one!