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Neuropathy: What works and what are scams?
Neuropathy | Last Active: 1 day ago | Replies (498)Comment receiving replies
@bigjohnscho
How many members on connect have you seen post a cure or even significant improvements?
But even if they did it doesn't guarantee you will receive the same results. Personally, I never bought into all the supplement, devices or clinic hype.
I also have epilepsy, neither neuropathy or epilepsy have a cure. I’ve acceped my diagnosis and there limitations and adjusted my lifestyle accordingly. I've had neuropathy for almost 40 years. As the condition progressed my pain eventually stopped, replaced by numbness and other complications. Looking back, the pain wasn't so bad after all.
Sadly many people choose to chase rainbows and end up disappointed and perpetuating the booming fraud market, making crooks richer.
Epilepsy medication has proven to be the most helpful. I have taken these horrible meds for nearly 60 years and none have helped my neuropathy and for 45 years didn't help my seizures either. However, my brother takes 3600 mg of gabapentin and it helps him some.
ALA as I understand it is more likely to help people with diabetic neuropathy. Supposedly it has something to do with insulin but ALA studies for other sufferers has shown little to no effect. Although, ALA given intravenously has a higher success rate.
If you choose to to shop on Amazon for a cure, think about this.
Research showed that in March 2019, there were 1.8 million new unverified reviews, with an average of 99.6% of them being 5-star reviews. Most of these reviews are from people paid to write them.
I hope you don't go broke searching for the elusive cure researchers all over the world have yet to find.
If start supplements, Id ask my doctor and pharmacist about them first.
You might want to check out The Peripheral Neuropathy site for potential treatment possibilities.
https://www.foundationforpn.org/
IF IT SOUNDS TOO GOOD TO BE TRUE, IT PROBABLY IS.
Jake
Replies to "@bigjohnscho How many members on connect have you seen post a cure or even significant improvements?..."
Surely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.
I posted about my symptom control with legitimate medical cannabis topical (homemade with coconut oil base) . Your post is so VERY spot on. I gave up trying to educate folks. I concluded many folks seek shortcuts and entitled based answers . Yes. I am being judgy. Ty for a fact based post.
I know this is off-topic, but I never understood the phrase "IF IT SOUNDS TOO GOOD TO BE TRUE, IT PROBABLY IS" ..... "probably is what, true? Too good?
Neuropathy has been my nasty sidekick for the past twelve years....it is in my feet and part of
my lower legs....tried ever thing from tens to blue laser ,,,,with no results...after a couple of
years of terrible times, my daughter recommend a combination of hydromorph contin and
jamp-pregabalin...it has reduced my neuropathy from a 8 out of 10 to a manageable 2.
I take 6mg hydromorph at 7am and 7pm,,,,200mg pregabalin at 12 noon and 9pm...
Herbert C Wyness
@jakedduck1 has anything helped with ur numbness i. legs and feet ? ( if u read my post you will see my problem! i’m soo scared im gonna b in wheelchair by next year at the rate the numbness is moving upward on my legs & upper thighs )
There was One Amazon thing that I ordered, which didn’t even work and I returned. The company offered me $50 to give it a good review.
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Jake - You hit the nail on the head! Your point to talk with doctor and pharmacist is absolutely necessary to make sure any new supplements do not interfere with effectiveness of on-going meds. Ed