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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@annpie88

My mother is suffering greatly with TN. She is my Dad’s primary caretaker and she is at the point where we need to look at different options to help her. She got the diagnosis at years ago from a neurologist in Savannah, Georgia. At that time he mentioned going in to cut the nerves. This frightened her (and he did not give very good statistics on it helping). She has been treating the flare ups with gabapentin and tramadol when it flares up. It seems to be flaring up more frequently and lasting longer (we think possible due to the stress of caring for my father). This current episode she actually took Percocet and ended up vomiting which obviously was misery with the pain that she is already in. She decided at this point that we need to find an expert and try to find something else to do! She is located in Statesboro, Georgia (about an hour from Savannah). Some people have told us to go to Mayo in Jacksonville, Fl. But we direction on who to go to and what would be a reasonable next step.

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Replies to "My mother is suffering greatly with TN. She is my Dad’s primary caretaker and she is..."

We have heard that BOTOX could be an option but do not know about how to go about finding a provider that is trained specifically in Tn.

Hello @annpie88, welcome to Connect. I can't imagine how difficult it must be for your mother to be your dads primary caregiver and needing help herself. Thank you for being an advocate for her. I know stress was one of my triggers for neuropathy but I only have numbness for a symptom and not pain. Here is an explanation of possible triggers for flare ups which I think could also apply to Trigeminal Neuralgia.

What Makes Neuropathy Flare up? Here Are 4 Common Causes and The Top 3 Solutions
https://nervepainguide.org/neuropathy-flare-ups/

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Has her doctor made any suggestions or reviewed her medications?