@pb50, thank you for thinking of me. I am hanging in as best I can as everything seems to be slowing down for me in functioning in life (like my batteries are draining and nothing is being recharged).
I love that you still have a sense of humor despite your many health challenges. You made me laugh this morning so thank you! 😃 Your dream made me think of my own experience with many doctors on a “lazy Susan” or a game of chance or blindfolded game of darts. We are spun around in our healthcare system and there is a lot of busyness but not a lot of improved health outcomes or quality of life for patients. Everyone wants to give you antidepressants and more medication as a bandaid to send you away without solving anything. We get so many tests but I question why when many doctors ignore abnormal results. I looked back at some of my 7 years of medical notes and records and see things now that should have been taken more seriously or looked at more closely. For example, I found multiple EKGs that show “infarct, old” and left ventricle hypertrophy. I also looked at rheumatologist bloodwork from 2017 and 2019 which showed autoantibodies for Lupus, Thyroid and Antiphospholipid syndrome and the doctor said nothing about this to me. He said I didn’t have RA/Lupus and sent me away with no referrals or follow up recommendations. I have lost time to address the autoimmune attack in my body and my health is significantly declining. I went to my new neurologist a couple days ago and they are doing a brain MRI to rule out MS and other changes that may be behind cognitive/vision/hearing changes. The neurologist also wants me to go to a rheumatologist to dig deeper into the anti phospholipid and lupus autoantibodies. I have been diagnosed with Hashimoto’s and hypothyroidism after having lobectomy due to suspicious nodule. It takes way too long to get diagnosed with autoimmune diseases while your body and quality of life deteriorates. I will continue to try to find things to laugh about since humor makes life more fun! 🙂