@aletta Welcome to Mayo Connect.
If you follow this link, you will find a discussion about the product. https://connect.mayoclinic.org/discussion/nerve-savior/
As a general tip, when evaluating supplements and treatments, whenever a seller doesn't provide an easy way to see a full list of the ingredients, it should be a "red flag." When you "Google" the name and only find the vendor's website with no independent product reports or reviews, another "red flag." When all the "positive reviews" are testimonials on the vendor's site, "red flag" number 3.
So, as a natural skeptic, I would say this product falls into the category of "too good to be true"
No truer words were ever spoken I almost got hooked in $15000.00 up front payment because he doesn’t accept insurance, he was very persuasive but to good to be true. I’ve been on it 3 days not much difference so I’ll give it 10 days I’ll keep in touch. Thank u for responding. How sad we can fly people to the moon, do heart transplants I could go on and on and l can’t figure out how they can’t help us with this horrible disease. God Bless U.
I gave it a full 30 days - no difference for me. I totally agree. Not enough is being done to find solutions for this painful condition. Oh wait - that's because Big Pharma wants to keep us hooked on Gabapentin, Lyrica, Cymbalta, etc. and scammers want to keep us buying their snake oil. Yeah, I'm pretty jaded after all this time about any of it. I've found a few things that help at night - a topical I've used for years called Ted's Pain Cream (www.tedsbrainscience.com) and it often soothes the nerves in my feet at night so I can sleep. I use their original formula, which has a light minty smell that dissipates quickly, and it's not greasy. I tried their extra strengh version but liked the original better. Other times, I use Salonpas Lidocaine Roll-On. It's all trial and error, but these are the few things that have brought me some relief. God bless you, too!
I have feet neuropathy from chemo & radiation treatments for breast cancer. I tried Nerve Savior and it didn’t help me. I have been using vitamin B12 Methyl 5000mg for 3 months and it seems to be helping my walking and stability. Feet are still numb, stiff and tingly and they feel extremely cold at times which makes it difficult to sleep. I find that elevating my feet above heart level seems to alleviate the extreme cold feeling. Also, I bought Skechers Step-in shoes which seem to help.
Those numb tingly feet benefit from what I call a rice bag which you heat in a micriwave. You can make one by filling a heavy large cotton athletic sock with rice, or use what I do and buy a "body shawl". I love it for cold feet and shoulders heat therapy. There are lots of places to buy one online. I get mine at https://www.grampasgarden.com/customer-favorites/small-body-shawl/
Those numb tingly feet benefit from what I call a rice bag which you heat in a micriwave. You can make one by filling a heavy large cotton athletic sock with rice, or use what I do and buy a "body shawl". I love it for cold feet and shoulders heat therapy. There are lots of places to buy one online. I get mine at https://www.grampasgarden.com/customer-favorites/small-body-shawl/
I’ve tried rice bags in microwave. it feels good while they’re warm but too much running back to reheat them especially in bed trying to get to sleep. I’ve also tried Gabapentin. Thanks for your concern.
You’ll want to share the ingredients of that supplement with your doctor to see what is right for you. Nerve Savior contains: Alpha-Lipoic Acid, Vitamin B6, Vitamin D3 (Cholecalciferol), Folate, Vitamin D12, Ashwagandha, Turmeric, Benfotiamine, Acetyl L-Carnitine, Broccoli Powder.
My PCP doctor recommended Alpha Lipoic acid for me. The neurologist told me it was okay for me to take B12 for 6 months but no more. And definitely not B6. My B6 is getting too high. B vitamins are essential but too much can damage nerves. Turmeric is best absorbed when eaten warmed up with black pepper - you’d want to find out if your body can absorb turmeric from a capsule. And, ashwagandha - I’ve looked before and I can’t find consistent reports whether this is good or not.
The other issue, is whether this brand is actually providing appropriate levels of the supplements or not. It drives me crazy to read the reports that say some supplements don’t have what their label says it has . . . I want to know which brands they know are mislabeled.
I have not used Nerve Savior but I’ve tried most others with same ingredients and had no success. I just can’t believe that neuropathy is incurable. I feel so desperate.
I have not used Nerve Savior but I’ve tried most others with same ingredients and had no success. I just can’t believe that neuropathy is incurable. I feel so desperate.
Welcome @bigjohnscho, Will they ever find the answer is the question many of us have on our minds. There are a lot of different complementary and alternative treatments that offer some level of relief for the symptoms but no cures. You might want to scan through the discussions and comments from members from this search results for "neuropathy what helps" - https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20what%20helps.
I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. Do you mind sharing a little more about your neuropathy diagnosis and what symptoms bother you the most?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
@bigjohnscho
How many members on connect have you seen post a cure or even significant improvements?
But even if they did it doesn't guarantee you will receive the same results. Personally, I never bought into all the supplement, devices or clinic hype.
I also have epilepsy, neither neuropathy or epilepsy have a cure. I’ve acceped my diagnosis and there limitations and adjusted my lifestyle accordingly. I've had neuropathy for almost 40 years. As the condition progressed my pain eventually stopped, replaced by numbness and other complications. Looking back, the pain wasn't so bad after all.
Sadly many people choose to chase rainbows and end up disappointed and perpetuating the booming fraud market, making crooks richer.
Epilepsy medication has proven to be the most helpful. I have taken these horrible meds for nearly 60 years and none have helped my neuropathy and for 45 years didn't help my seizures either. However, my brother takes 3600 mg of gabapentin and it helps him some.
ALA as I understand it is more likely to help people with diabetic neuropathy. Supposedly it has something to do with insulin but ALA studies for other sufferers has shown little to no effect. Although, ALA given intravenously has a higher success rate.
If you choose to to shop on Amazon for a cure, think about this.
Research showed that in March 2019, there were 1.8 million new unverified reviews, with an average of 99.6% of them being 5-star reviews. Most of these reviews are from people paid to write them.
I hope you don't go broke searching for the elusive cure researchers all over the world have yet to find.
If start supplements, Id ask my doctor and pharmacist about them first.
You might want to check out The Peripheral Neuropathy site for potential treatment possibilities. https://www.foundationforpn.org/
IF IT SOUNDS TOO GOOD TO BE TRUE, IT PROBABLY IS.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
My neuropathy is weird because I suffered nerve damage both from from the cancer lesion on my thoracic spine and from the emergency surgery to debulk it.
I was on Lyrica (Pregabalin) for a couple of years — which did make a big difference when we finally got the dose right — but then I decided, in consultation with my medical team, to titrate off it because I already had weight gain as a side-effect of my primary cancer meds, and I didn't want to compound that with Pregabalin and end up dealing with type 2 diabetes as well. It took three tries over more than a year.
Now, my body and brain have learned to ignore or block enough of the nerve pain that I can just live with the rest. When it flares up I take a Tylenol — Ibuprofin is contra-indicated with my main meds — but I try not to do that too often, because it seems to become less effective the more often I take it. Staying active also seems to help (the pain, of course, says "Stop!", but if you can move through that, it seems to diminish a bit).
Connect
Connect
Like
Helpful
Hug
@aletta Welcome to Mayo Connect.
If you follow this link, you will find a discussion about the product.
https://connect.mayoclinic.org/discussion/nerve-savior/
As a general tip, when evaluating supplements and treatments, whenever a seller doesn't provide an easy way to see a full list of the ingredients, it should be a "red flag." When you "Google" the name and only find the vendor's website with no independent product reports or reviews, another "red flag." When all the "positive reviews" are testimonials on the vendor's site, "red flag" number 3.
So, as a natural skeptic, I would say this product falls into the category of "too good to be true"
Sue
-
Like -
Helpful -
Hug
4 ReactionsI gave it a full 30 days - no difference for me. I totally agree. Not enough is being done to find solutions for this painful condition. Oh wait - that's because Big Pharma wants to keep us hooked on Gabapentin, Lyrica, Cymbalta, etc. and scammers want to keep us buying their snake oil. Yeah, I'm pretty jaded after all this time about any of it. I've found a few things that help at night - a topical I've used for years called Ted's Pain Cream (www.tedsbrainscience.com) and it often soothes the nerves in my feet at night so I can sleep. I use their original formula, which has a light minty smell that dissipates quickly, and it's not greasy. I tried their extra strengh version but liked the original better. Other times, I use Salonpas Lidocaine Roll-On. It's all trial and error, but these are the few things that have brought me some relief. God bless you, too!
-
Like -
Helpful -
Hug
1 ReactionThose numb tingly feet benefit from what I call a rice bag which you heat in a micriwave. You can make one by filling a heavy large cotton athletic sock with rice, or use what I do and buy a "body shawl". I love it for cold feet and shoulders heat therapy. There are lots of places to buy one online. I get mine at https://www.grampasgarden.com/customer-favorites/small-body-shawl/
I’ve tried rice bags in microwave. it feels good while they’re warm but too much running back to reheat them especially in bed trying to get to sleep. I’ve also tried Gabapentin. Thanks for your concern.
I've tried all of the supplements and nothing works I'm so frustrated
I have not used Nerve Savior but I’ve tried most others with same ingredients and had no success. I just can’t believe that neuropathy is incurable. I feel so desperate.
Will they ever find the answer?
Welcome @bigjohnscho, Will they ever find the answer is the question many of us have on our minds. There are a lot of different complementary and alternative treatments that offer some level of relief for the symptoms but no cures. You might want to scan through the discussions and comments from members from this search results for "neuropathy what helps" - https://connect.mayoclinic.org/search/discussions/?search=neuropathy%20what%20helps.
I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. Do you mind sharing a little more about your neuropathy diagnosis and what symptoms bother you the most?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
-
Like -
Helpful -
Hug
52 Reactions@bigjohnscho
How many members on connect have you seen post a cure or even significant improvements?
But even if they did it doesn't guarantee you will receive the same results. Personally, I never bought into all the supplement, devices or clinic hype.
I also have epilepsy, neither neuropathy or epilepsy have a cure. I’ve acceped my diagnosis and there limitations and adjusted my lifestyle accordingly. I've had neuropathy for almost 40 years. As the condition progressed my pain eventually stopped, replaced by numbness and other complications. Looking back, the pain wasn't so bad after all.
Sadly many people choose to chase rainbows and end up disappointed and perpetuating the booming fraud market, making crooks richer.
Epilepsy medication has proven to be the most helpful. I have taken these horrible meds for nearly 60 years and none have helped my neuropathy and for 45 years didn't help my seizures either. However, my brother takes 3600 mg of gabapentin and it helps him some.
ALA as I understand it is more likely to help people with diabetic neuropathy. Supposedly it has something to do with insulin but ALA studies for other sufferers has shown little to no effect. Although, ALA given intravenously has a higher success rate.
If you choose to to shop on Amazon for a cure, think about this.
Research showed that in March 2019, there were 1.8 million new unverified reviews, with an average of 99.6% of them being 5-star reviews. Most of these reviews are from people paid to write them.
I hope you don't go broke searching for the elusive cure researchers all over the world have yet to find.
If start supplements, Id ask my doctor and pharmacist about them first.
You might want to check out The Peripheral Neuropathy site for potential treatment possibilities.
https://www.foundationforpn.org/
IF IT SOUNDS TOO GOOD TO BE TRUE, IT PROBABLY IS.
Jake
-
Like -
Helpful -
Hug
21 ReactionsMy neuropathy is weird because I suffered nerve damage both from from the cancer lesion on my thoracic spine and from the emergency surgery to debulk it.
I was on Lyrica (Pregabalin) for a couple of years — which did make a big difference when we finally got the dose right — but then I decided, in consultation with my medical team, to titrate off it because I already had weight gain as a side-effect of my primary cancer meds, and I didn't want to compound that with Pregabalin and end up dealing with type 2 diabetes as well. It took three tries over more than a year.
Now, my body and brain have learned to ignore or block enough of the nerve pain that I can just live with the rest. When it flares up I take a Tylenol — Ibuprofin is contra-indicated with my main meds — but I try not to do that too often, because it seems to become less effective the more often I take it. Staying active also seems to help (the pain, of course, says "Stop!", but if you can move through that, it seems to diminish a bit).
-
Like -
Helpful -
Hug
6 Reactions