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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: May 27 1:23pm | Replies (316)

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@richj8

Hi everyone. I just joined and was recently diagnosed with SFN earlier this week, after struggling with many difficult symptoms for over 18 months. The main question two questions I have are 1) does anyone suffer from SFN affecting their cranial nerves? I’ve had burning in my right ear, right side of my tongue and throat since this all started fall of 2017. 2) does SFN cause muscle twitching for anyone?

I was originally told this was affecting my trigemnial nwrve, but it’s more body wide now. However, the most pain I feel is constant burning pain in my ear mouth and throat.

I have follow up tests next week as my neurologist continue to try to pinpoint the cause of the SFN. They have been skeptical of my symptoms up to now, since they couldn’t find a cause until the recent punch biopsy. I’m on lyrica but it doesn’t offer enough help, especially for the burning pain in my face and mouth. Any treatment suggestions would be incredible. Thank for your time!

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Replies to "Hi everyone. I just joined and was recently diagnosed with SFN earlier this week, after struggling..."

What is SFN?

It took 8 years for me to finally be diagnosed with SFN. 8 years of horrific nighttime neuropathy. The 10mcg Butrans patch worn 24/7 with Percocet stopped the nighttime neuralgia instantly. The pain I have in my left ear is still a daily problem. I believe it is caused by Trigeminal neuralgia not SFN. When the Trigeminal nerve shoots it shoots thru the ear into my mouth and down my throat. Botox injections are a must for TN.