Sounds a lot like my situation. I've had LCA for 21 months[that's since diagnosis]. I suggested to my rheumatologist that it may have been triggered by stress . I had previously had PMR back in 2015. He said "no" . For me the coincidence was too great. Our dog had just died at only 9 years , we had packed up our home and moved from city to country location , leaving behind friends and family and we were 79 and 89 at the time. It was a very stressful time. So I have been on a roller coaster with prednisone and related side effects which have been quite devastating eg diabetes 2 , foot neuropathy , lumbar stenosis.At the moment I am on 7mg and having an Actemra injection once per week , going down with prednisone half a mg every 10 days until I reach 5 mg. My blood results are in normal range but my doctors are not happy because my eyesight is still compromised . So tomorrow I am having an expensive Petscan of brain, aortic arch and associated blood vessels. It is quite a journey as you are experiencing also. So my sympathy for all that you are going through and I hope there is improvement soon for both of us..