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← Return to Trigeminal Neuralgia*
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Hi everyone,
My name is Jenn and I pretty sure that I am about to be diagnosed with Peripheral Trigeminal Neuropathy. My understanding of it comes from the front seat after watching my mom suffer with it for years. She went undiagnosed for years until a doctor at the Mayo clinic diagnosed her. She tried multiple forms of treatment and nothing ever worked. She passed away at the 57 due to other medical complications, but she lived in pains for years before she passed. I have slowly been showing the signs for 6 years and after numerous dentist appointments to rule out an issue with root canals, and going to Endodontist to rule out the bad root canals, there is nothing left. All my symptoms match my mom's symptoms and it was just suggested that I call a Neurologist to start looking into the issues I ma having. Since I just walked this trail with my mom, I am familiar with many of the steps. However; I would love ot hear how others deal with the facial pain caused by this disorder.
Thanks in advance for reading my message and have a wonderful evening!
Namaste!
Jenn
Replies to "Hi everyone, My name is Jenn and I pretty sure that I am about to be..."
Hi Jenn I didn't know what I was having, except discomfort when I was eating. So I went to the dentist and she suggested that I was having pain in that area, my upper tooth on the left side, because stuff was getting in from the back of the tooth and dropping into my tooth and that was the pain I was feeling. That tooth had to be removed, according to her. Well I got up and said that was the most idiotic explanation I ever heard and left, never to return to that office again. Later as the pain became more intense I seek a neurologist in my health group and he explained to me without touching me, that I had Trigeminal Neuralgia. He then proceeded to tell me how it would all play out, he was right on and prescribed my first medication. I did my research then about my way of dealing with the pain and lived my life until I had none. I got the surgery, after I found the doctor I felt was my best choice and I am 1000 % better. I keep stressing this point that you are your best advocate for what you have or need and pursue that first, if you feel adamant as I felt, do your homework and get all the information that YOU need and then decide with all that info, what is the best course for you. I hope that helps you in your journey to a solution of what you are going through.
Connect
Hi Jenn @jennheadlee, Welcome to Mayo Clinic Connect. There is another discussion for Trigeminal Neuralgia where your post will receive more visibility and you will be able to meet other members discussing the condtion. I'm tagging our moderator @lisalucier to see if we should move your discussion into the following discussion. While we wait you may want to read through the discussion and meet some of the other members.
Groups > Brain & Nervous System > Trigeminal Neuralgia*
-- https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
Are you able to share a little more about the symptoms you are having now?
Mayo Clinic’s info on trigeminal neuralgia treatments list a variety of anticonvulsants, antispasmodic agents or botox injections:
-- http://mayocl.in/1Mz18C8
You may wish to read this older discussion thread where Connect members are talking about their experiences with treatment
-- http://mayocl.in/28SOKk5
John