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DiscussionHas anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Replies to "Yes I would say your comments are correct for a positive diagnosis of CIDP or EBV..."
Mine have been hazy since 2002 when I had bacterial spinal meningitis. No on would listen to me about my feet. No one would try IVIG therapy so I have proceeded to get worse. I live in Texas and had to go to Boston to get my diagnosis of my tremors being caused by the neuropathy.
Mine is autoimmune but I test negative for everything. In my chart one doctor says Lupus another one RA. All my inflammatory markers are high. When the doctor brought up CIDP I really struggled getting tested still haven’t been tested. The appointment is in July. My thoughts is since mainly men get this why test me? I guess the other four percent are women very low percentage but the more I read about it the more the possibility arises. I walked out really angry at this neurologist for not reviewing any of my medical records.