Hi Mary, That’s great news about being able to stay in Chicago for the transplant. Much easier than relocating to Texas for a few months, though I know you’d both do it in a heartbeat if it was the better option.
Regarding your husband having another round of chemo before June, if it helps, my transplant doctor had also recommended that as well. As you said, with his last chemo early in May, this gives your husband time to recover his blood counts and some energy again before transplant in June. It also helps assure that he has minimal disease. The cleaner going into transplant, the better. My transplant was June 28th (2019) so basically a similar time frame. My last week of chemo was May 16-21, so I was feeling pretty perky again by the time I got to Rochester June 13th for testing and admission.
There is also one more round of chemo, called Reconditioning, the week immediately prior to transplant. The goal of this chemo is to clean out the bone marrow and lymphatic system. It creates a blank canvas for the new stem cells. In the event that there are any bad actors left, the new immune system should recognize those leukemic cells and quietly take them out as they reemerge from dormancy.
Excellent news on the donor too! Love it when a plan comes together! Now’s the challenge for everyone to stay healthy and keep the anxiety level down, huh? LOL I know!! Easier said than done. The thing that cracked me up the most was all of this drama leading to transplant and it basically takes about 20 minutes for the actual event of transfusing the stem cells! Pretty anti-climactic. But what a gift of a second chance at life! We get new birth certificates! 😉 And yes, tell your husband he will get to celebrate 2 birthdays every year now!
I hope you two are able to get away for a little break somewhere to just veg out and try not to think of anything medical for a while. This does become all consuming with so much focus centered on your husband’s condition. This gets better I promise and then life resumes again for both of you. It all can feel overwhelming with the responsibilities of most everything falling on your shoulders, Mary. So just choose your priorities and if some inconsequential things fall through the cracks, let them go and rest when you can.
Right now it’s so gorgeous with all the spring blooms. I hope you’re both able to relax and enjoy the healing benefits of Mother Nature. Sending a hug!
Hi Lori,
Your words and encouragement are so soothing and exactly what we need now. My husband is so grateful to you for all your wisdom and positive attitude! I talk about you with him like you are one of our friends. 😊 Thank you for confirming the timing of your last chemo cycle before transplant. That’s so reassuring!
Yes, it can all be so overwhelming for me sometimes. I am grateful that things are aligning for the transplant, but there are so many details to attend to. I am anxious about a lot of things, mostly a good outcome for my husband. I have a deep faith and need to keep my heart focused on that. I so appreciate hearing things will get better.
We have a full day of appointments and a couple of tests with the stem cell team later this week. Today was the last day of oral chemo on this cycle! Yahoo! Here’s hoping we see his counts start to climb and his faitigue start to wane a bit so he can enjoy some activities over the next few weeks. Another biopsy is scheduled next week. Praying for best results possible.
I just signed a lease for an apartment located a half mile away from the hospital so I can walk back and forth instead of driving 30 miles each way in notorious traffic. Our dog is going to stay with a friend for the duration. I’ll miss her very much.
We have another amazing blessing coming our way as well in June. Our daughter is due with her second child and is scheduled to be induced on my husband’s actual birthday at the end of June. By that time, it will be his second birthday. 😊 The timing is extraordinary. So in the midst of all this hard stuff, we look forward to the birth of another grandson.
Lori, I believe your mentoring of all of us seeking refuge and hope in the dark days of diagnosis, alarming prognosis, and scary treatments, comes from a divine place. Thank you for your generous spirit, steady guidance, and sense of humor. Our burdens are a little lighter because of you.
Mary