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← Return to Trigeminal Neuralgia*
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Thanks for your kind email! I was experiencing symptoms,likely like most with Trigeminal Neuralgia, that were thought to be other than TriGem. Indeed for years, I was treated by some of the finest dental practitioners in NYC and had a number of teeth removed but nothing alleviates the increasingly unusual pain - the stinging, burning and somewhat maddening pain that is attendant to TRIGem.
More specifically to answer your question,it has been ongoing about four years before I sought neurological opinion and treatment. I fairly early on opted for Gammaknife once it was determined that it could be an effective modality. I live (and love) an active lifestyle and for me (no judgements as to others !) I wanted the pain g.o.n.e.! not managed. Having said that it’s still a work in progress as I am scheduled for round two with the Gammaknife.
Have a great day!
Replies to "Thanks for your kind email! I was experiencing symptoms,likely like most with Trigeminal Neuralgia, that were..."
Frangreen1143
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Hello, @frangreen1143 - I'd also like to extend a welcome to Mayo Clinic Connect. I imagine it was helpful to finally get a diagnosis of trigeminal neuralgia and know what you were dealing with.
Hoping members in this discussion like @stfnwtl89 @scarlettkittaen @pcm1957 @bobbich @shelley701 @gchildren7 will return with some thoughts about your journey to your trigeminal neuralgia diagnosis and whether they, too, may have experienced a long road to a diagnosis. They may also like to hear about and have some thoughts on the Gamma Knife radiosurgery. @hopeful33250 may also have some input.
You said you are getting the Gamma Knife radiosurgery and also treating via pain management, @frangreen1143. Will you share more about what types of pain management you are using for the trigeminal neuralgia?