← Return to Trigeminal Neuralgia*
Discussion
Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)
Comment receiving replies
Replies to "Hi @frangreen1143 and Welcome to Connect! Thank you for sharing your hope-inspiring story. I'm sure that..."
Hi @ethanmcconkey, I have been diagnosed with trigeminal neuralgia since 2004. My TN is atypical, and I've been told not to use Gammaknife or surgical devices. I'd like to know if this is true with other people diagnosed with ATN. I appreciate the information.
Thanks for your kind email! I was experiencing symptoms,likely like most with Trigeminal Neuralgia, that were thought to be other than TriGem. Indeed for years, I was treated by some of the finest dental practitioners in NYC and had a number of teeth removed but nothing alleviates the increasingly unusual pain - the stinging, burning and somewhat maddening pain that is attendant to TRIGem.
More specifically to answer your question,it has been ongoing about four years before I sought neurological opinion and treatment. I fairly early on opted for Gammaknife once it was determined that it could be an effective modality. I live (and love) an active lifestyle and for me (no judgements as to others !) I wanted the pain g.o.n.e.! not managed. Having said that it’s still a work in progress as I am scheduled for round two with the Gammaknife.
Have a great day!