I’m sorry you are going through this. I have Ulcerative Colitis (25 plus years) and in 5/2019 an obstructing tumor was found. I had a bowel resection, and then had to be reopened due to a leak. I started chemo therapy but it caused me so much diahrrhea and spasms that they stopped. A few days after stopping, I woke up with severe stomach pain. My husband was out of town m, so I had to be transported to the hospital. I had a small bowel obstruction, and it was caused by adhesions. I spent a week with an NG tube and trying to clear it with various methods, and it didn’t work, so they removed 15 cm of small bowel. I was very paranoid about another one because it was so painful. I just made sure to over chew my food and also just didn’t eat for awhile due to the trauma. I have not had another blockage since, but if I ever feel like food isn’t moving, I lay down and really massage my abdomen with firm presses in a clock wise way. I push down hard enough to cause pressure, and I can hear the air and bubbles start moving. Initially I did this quite frequently because I was so scared of getting another. Adhesions form quickly and I’ve had multiple surgeries since then (after the bowel obstruction, the surgeon realized he may have knicked my small bowel because I had a leak. I ultimately developed an enterocutaneous fistula and dealt with that drainage out of my abdomen for two months. Ultimately, the fistula broke loose and I had a full perforation requiring emergency surgery and turned septic.
It’s now been almost 5 years since the initial cancer surgery, and my stomach is doing good and I have pretty much gotten over the PTSD. I have identified food that I can’t eat (asparagus, celery, big quantities of steak) and am somewhat managing my UC with Entyvio