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Dercum’s Disease: Let's create a support group

Chronic Pain | Last Active: 3 days ago | Replies (119)

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@lumpybob

Hi, hope I'm doing this correctly!!
I am fortunate, having only one (not many!) burning lump. It was diagnosed as lipoma over 10 yrs ago. Dercum's diagnosis was only a few weeks back as I was just checking that lumps were stable and not sinister. Rheumatologist was asking weird questions about cognitive function, fatigue, etc. This is something I have had concerns about for some time - but it seems glossed over in the Dercum's literature, which is lump focussed. I've got the lumps, but its the other symptons that are causing the problems!
Not sure how it all fits together, and I'm still new to Dercum's as the explanation of a wide range of symptoms.
Any thoughts welcome.

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Replies to "Hi, hope I'm doing this correctly!! I am fortunate, having only one (not many!) burning lump...."

Hi! Just fyi: there is a good support group for Dercum’s on Facebook…check it out! Hope you’re feeling better! I do find that eating low fat and mostly vegetarian and vegan meals helps me feel better, more energy, and less fatigue. Blessings to you!! Also, low stress and exercise/swimming helps a ton! Also, lymphatic massage (gentle) helps greatly and I almost always wear my compression socks as well now, truly helps!!