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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 11 hours ago | Replies (1229)

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@astaingegerdm

@jmendez37
Welcome to Mayo Connect!
You have had a rough time- I think all of us here have had a similar experience.
What happened at your last Mayo visit?
When I had the ligament release the surgeon told me I had a 50-50 chance of success. I knew I had to have the surgery because I couldn’t continue living like I was then.
It actually was 100% success.
Laparoscopic surgery. There was some pain afterwards- Gabapentin worked well. I assume it was nerve pain. They also removed nerve plexus.
There was no more pain related to eating!
However, the celiac artery had a kink from the ligament pressure and in 6 months I needed a stent to keep it open.
Good luck! Let us know how it went.

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Replies to "@jmendez37 Welcome to Mayo Connect! You have had a rough time- I think all of us..."

My last visit went horribly wrong..with not being able to eat or drink "fasting"many hours before 2 testing procedures..then hours of delay after scheduled time frame..then low blood sugar and passing out due to dehyration. They did not check to see if my IV was connected and working. Epic Fail on their end. Had to go To the ER side of the mayo..just all around a terrible sh*t show. I notified my experiance. Receieved a letter in the mail for them apologizing of the time delays of the procedure but then was told that i allowed them to still treat me and go ahead with the procedure even though i was in a state of fasting essentially for 3 days 😐 " Mind you i traveled 5 hours from the panhandle to get these procedures done, i didnt feel like i had any options at that point. If i had said no!.. reschule me ..waiting for weeks to get everything going again , just felt impossible considering i have been dealing with this for so long and i am just tired.. With that experiance i am now more of an Advocate of my well being than anything. 1st procedure was an arteriorgram procedure. 2nd was the celiac plexus nerve block. My doctor was great and he cant help the time delays for sure i just wish the care side of it all was better so no one has to go through what i and my family had to deal with. I dont remember much. 🙁

I’m glad you are recovering! Which type of Doctor at Mayo diagnosed you? Did you then see a surgeon ? I’m at Mayo now trying to get answers but the GI Department is booked through August.