← Return to Evenity and side effects: What helps joint and muscle pain?

Discussion
Comment receiving replies
@tkdesign

I did not have muscle pain but developed severe insomnia a week after my injection...it was the worst I'd ever had in my life. I thought it was maybe just a menopause thing at first, but decided to not get another injection. It stopped a week or two after i stopped the Evenity. I was told no one else ever had that side effect, even when i called the drug company to report it....this has to be a lie as I've found it listed as a side effect on drug information sites. Even my pharmacist found it listed. I also developed horrible pain in my teeth, extreme sensitivity that also went away when i stopped the drug. I've yet to find a bone drug i can tolerate. These "one size fits all" approaches for women's health are total BS. Someone who is thin, short and 100lb is not going to need the same amount of medication as someone 200lb, big boned, tall, whatever..different body fat percentages, different muscle mass, different hormone levels in the body. They just don't bother to do the trials for women at different sizes.

Jump to this post


Replies to "I did not have muscle pain but developed severe insomnia a week after my injection...it was..."

@tkdesign the studies I have seen on Evenity did base doses on weight, The company settled on a dose appropriate for a 150 lb person. I declined the second shot for two months because I weigh 105, I really needed 135 mg but one shot is 110mg. Two shots is 210mg.

I started with a low dose of Tymlos and will do the same with Reclast, I will get a 20% or even 10% dose first, with IV hydration (I requested) and slow infusion.

We can and need to make these drugs work. If your doctor won't be flexible, maybe try to find another one.

Are you on any bone drugs now, as you mentioned you haven't found one you could tolerate? Of the drugs you tried, did any of them result in positive gains in BMD?