I had nasopharyngeal cancer treatment in early 2006, and the late effects started in 2012 - at that time, speech and swallowing was not a big issue (still able to communicate well and still able to swallow with liquid to assist). But during the COVID pandemic lockdown, the late effects of radiation got so bad to the point where I had problems with speech (words slurring) and with swallowing! I am now diagnosed with dysphagia and with severe neck fibrosis. I am going on the assumption that there is no known cure for my speech and swallowing which are the late effects of radiation - and at the moment I am doing my best in dysphagia exercises to prevent these disabilities from deteriorating! A big change to my life - going forward !

I also have fibrosis affecting my carotid arteries and swallowing. I have regular NIVA ultrasound studies. My vascular surgeon said surgery for carotid occlusion is most likely going to be needed in the next few years.swallowing has become increasingly difficult. I am 7 years post chemo radiation using proton radiation for stage IV SCC base of tongue primary and mets to two lymph nodes. My fibrosis is worsening and my oncologist isn’t offering any relief other than PT, OT, Speech and swallowing Therapy. As the fibrosis worsens, this week he recommended palliative care to see if they had suggestions to improve quality of life. Has anyone else been offered this and if so, was it helpful? Also wondering if anyone has had carotid surgery post treatment. Thanks!