My FMD was discovered a year ago in the emergency room where I went because of 2 severe rotational vertigo attacks when it was spinning so fast that I couldn't walk and just vomited for 8-12 hours. A CT angiogram showed it in my neck vessels but also in the cerebral artery, no further examination of other vessels was done.
My symptoms after that are a howling tinnitus, slightly unsteady when I walk, numbness in the face, headache pressure over the forehead, eye pain, poor memory which I also had after my TIA in 2023. Now I'm going to have my liver and abdominal aorta examined.
None of my doctors I've had have known anything about it but my last one read about it on the computer anyway. FMD is a rare disease and in my country there is no FMD group so I'm grateful I get to be here.