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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@pcm1957

I have bilateral trigeminal neuralgia. I had microvascular decompression surgery on the left side in march. ....I still have pain in the incision site, fullness at times, if I bend over too much, dizziness. ...the pain is still there.....Im back on neurontin with all its side effects. Some times I feel like I have ice picks stabbing in my ears and like I've been hit in the face with a 2×4 but of course I look fine so no one knows why the tears or twisted look on my face. Sometimes I think Im gonna lose it.

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Replies to "I have bilateral trigeminal neuralgia. I had microvascular decompression surgery on the left side in march...."

I'm SO VERY SORRY for your pain and suffering; I sincerely empathize. You're right, the outside world has no idea of the pain we experience while we still "Look Good". Hang in there; others feel for YOU !