Had Surgery for Normal Pressure Hydrocephalus (NPH)? - Are you glad?

Hi! My husband and I live in southern Ontario, Canada. We are healthy and active seniors in our early 80's. After my noticing some new and surprising memory changes in my husband in Nov/23, we saw our family doctor. We were lucky to get an MRI very quickly. He received a probable diagnosis of NPH. It was done at Toronto Western Hospital which has a topnotch neurological centre. We are still waiting to see a neurologist. Waitlists are years long here! I have been advocating for, making calls, asking questions, and nudging our FD, but we still wait. Apparently, not many neurologists here assess for NPH. In the meantime, the memory changes have now become constant and alarming. Otherwise, he's pretty good. Cognition is fine, he does outdoor chores. No incontinence. He walks slowly without aids. He has quite bad kyphosis (lifetime) and I sometimes wonder if this may have any effect. He's never had a known head injury. We are eager to get help, but then, I read the post-op stats and become scared. I feel a lot is on my shoulders to push, to find answers, and to make the final decision about surgery or not. He trusts me and I know he will go along with whatever I feel is right. Our family (3 grown children) is very supportive and I don't worry about them being critical. Ditto our siblings. Maybe it's because I'm a retired Reg N that I feel I must make the "right" decision. Of course, it will help a lot when he is finally assessed by a N and by NS. And b/c of research studies I took when I was getting my BScN, I do know that stats can be funny things. That is, success will be determined by several factors: the skills of the NS, the follow-up, the state of one's health, the social supports, and one's overall health etc etc. He stays goes walking every day. and enjoys the news and discussions about astronomy and the weather :). I have Paroxysmal AFib (very well controlled) and so, we both stay well hydrated and eat very healthfully. He is also seeing a very good osteopath 2x a month. It may not help, but my husband thinks it does, and that's OK. One scientific article proposed that it might help. Thanks for your time.