Thank you to all who replied to my post. It’s kind of weird how little I really know about my cancer compared to others who are highly aware of mutations, subtypes etc. I believe it’s my own fault that I don’t know. Most of it was discussed early in my diagnosis and my husband remembers things that I don’t. For example, he recalls the dr telling me that immunotherapy would only be less than 5% effective for me and that the side effects may not be worth the benefits. I also had one bout of ulcerative colitis about 8-10 years ago and apparently that can be a risk with immunotherapy.
What I do know is that I have adenocarcinoma non small cell and up until now it’s been regional with metatasis to clavicle lymph nodes. One thing that still makes me wonder is when my records were sent through Grand Rounds (an insurance benefit where I can have a team of doctors give a second opinion) one of the drs felt I had two types of cancer - adenocarcinoma as well as squamous cell. My own dr didn’t seem to agree with that at least not to the point where he would change treatment plans. I do believe it’s time to get yet another opinion and learn more about my cancer and potential options. I appreciate the input as well as referrals.