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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@annamh

@vickylynn, when trileptal was in my med cocktail, had more pain free days than now, but my sodium kept dropping to a critical level and ended up in the hospital, just would like to be pain free. I sometimes catch myself taking the frustration out on my family. That's not good.

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Replies to "@vickylynn, when trileptal was in my med cocktail, had more pain free days than now, but..."

I get blood work every three months. So far no problem. I have to take it three times a day. I get pain about six hours after taking a pill. The only problem with this is it doesn't carry me through the night. I wake up with pain and a halo feeling in my right eye. My best friend doesn't get it that I am not as social anymore. I just don't feel like shopping or dinner with our friends. I feel lucky to make it through a day of work. My friends at my job can tell when things are bad because they are with me more than my husband or my best friend. Hard to have patience and enjoy life with so much pain. It has helped me to find people with the same problem I felt like no one ever understood what I go through.

I do not like eating in public I never know if I am hitting my mouth and have it on my face because I can't feel it. does anyone else have that problem?? I like being outside when it is cold my face feels better having something cold on it. lets all try to have a good day tomorrow good luck

My blood work is that often also. I take one day at a time, anymore

I understand I'm the same way take it out on the Family just glad they all understand what's going on they changed my cocktail around sodium doesn't drop but I sure get extra tired