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← Return to Trigeminal Neuralgia*
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Brain & Nervous System | Last Active: Mar 23 12:49pm | Replies (327)
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@vickilynn1959 , I hope things with the pain is getting better. I am now having the pain on both sides of my face, my teeth hurt most of the time. The weather seems to affect it also. My meds keep changing to help with the pain, I now take 400mg of Dilantin daily, cut down on the Neurontin from 2400mg daily to 1200mg in the am and add 600mg if needed. And lately I have had to add more. At times it even hurts to eat. Dentist said nothing is wrong with my mouth that he can see. I wonder if it is worth it to do the GammaKnife.
Anna
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Hi Anna, I have a similar situation. I have posted my Bio but the site will not let me post it any more. I have had this for 4 years and have gone thru, ENT, Oral Surgeons, Dentists, Doctors and Neurologists. They are all stumped. I have had grinding in my mouth which caused a tooth to break in my mouth which I think has caused the problem. I am getting a Brain MRI next week, so I hope that we are able to find the problem. I have been on 3 different types of medicines which last about 5 months, then I have to change. I am currently on Oxcarbanzapine and I have had to increase the dose because I am not able to manage the pain. I have to work, and I know that this is going to drop my sodium levels more. I just hope that I find a solution. What treatments have you had since 2017? Have you found any relief yet? I pray that you have. I look forward to hearing from you. Amberly