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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Mar 23 12:49pm | Replies (327)

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@scarlettkittaen

Hello, ladyjane85,
I'm sorry for your pain. I encountered TN 21 years ago before & after a root canal procedure. Then, I was using 800mgs. of Ibuprophen, every 4 hrs. . . . .which only took the edge off. Eventually, it seemed to disappear on its own. Now, having had another root canal, last March, seems to have ended the remission. I now am using 600mgs. of ibuprophen, every 6 hrs. & 10mgs. of Rx Flexeril every 8 hours. This dosen't eradicate the pain, but, hopefully, diminishes its severity. At times I feel hopeless; perhaps this Group can offer remedies, as well as support. NSAIDS can cause internal bleeding, so we can't take large doses.

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Replies to "Hello, ladyjane85, I'm sorry for your pain. I encountered TN 21 years ago before & after..."

Hi, I am in Florida with a similar situation. I am so sorry to hear that you are going thru that. I cry daily over this pain and agony that I go thru. You feel like you are on an island by yourself just trying to keep your head above water. I run a staffing company and it is so hard for me each day to get thru it. I will be 46 in May and I have been dealing with this for 4 years. I have seen Oral surgeons, dentists, neurologists, and doctors. I have had 2 good teeth taken out due to the pain. I have spent thousands of dollars to see dentists and oral surgeons for them to tell me that they are not sure what is going on. I thought that I was going to go crazy... I was told by one that he thinks that it could be Trigeminal Neuralgia. So, I started researching. I finally found a Neurologist that would help me. After 3 years of searching and not knowing. He has had me on 3 different types of medicine. This is because they stop working after a period of time. I am currently on Oxcarbanzepine 600mg 3 times a day. But it is causing internal issues. So, now I am getting a Brain MRI with contrast to see if they see a pinched nerve. I am hoping that we can find the cause of it all.
One night I woke up and I had a piece of chipped tooth in my mouth. This was before the Trigeminal Neuralgia started. I had just gotten home from the hospital recovering from my 2 spinal surgeries. So, ever since then I have had this problem. I believe that this started from the collision in my mouth. It aggravated the nerves. But, I am having a hard time having any one believe this! It has been such a battle. I want to take out all of my teeth to see if this would help. I am an Electro-hyper sensitive. So, I am afraid to get implants, I want to just get dentures to see if this will help. But, they will not give them to me because my teeth are good. I am in a battle that I feel like I can't win... I am sorry that you are going thru what you are dealing with. I can really relate with the frustration of it all. I pray that we all find solutions and that this can be taken away and give us our lives back!