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Decided not to have surgery. What’s next?

Pancreatic Cancer | Last Active: May 5 11:48pm | Replies (44)

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@marciak9

So sorry to hear that Warren. I don’t knows why but my CA19-9 has been in good range since I started folfirinox last year. They stopped the irinatican right away because my throat started to close. It’s nice to chat with others that are going through the same things.

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Replies to "So sorry to hear that Warren. I don’t knows why but my CA19-9 has been in..."

Warren - I read your note with sadness. I wish I had the solution...but like so many others are experiencing, the solution is elusive.

My wife and I are at Mayo this week, completing her 3rd week of chemo radiation. Over the course of the week we have met again with the team of doctors and nurse practitioners, as we (she) tries to make a decision on surgery. Recall, this is the aggressive surgery involving vessel reconstruction, removing spleen, gall bladder etc. which will no doubt result in adjustments to her quality of life. We have set a surgery date for June 25 but are second guessing the plan daily as we seek additional guidance. In discussions this week, we learned opting out of the surgery of this nature is more common than we assumed - perhaps 30-40 percent as suggested by our oncologist. I agree with Marcia, even thought we may not have the solutions, its nice to chat and share with others going through similar situations.