I feel for you and know that having a rare disease puts you at a disadvantage and puts the onus on you to research, learn and fight for what you need. My father has Behcets and was diagnosed by a neurologist. His presentation was different than yours, but so many symptoms can occur, it’s good to be aware and prepared for them all. The PAH and aneurysm require cardiovascular specialists, frequent monitoring and aggressive treatment of the PAH. A teaching hospital or special clinic like Mayo, Cleveland Clinic and similar would be helpful. My dad had arthritis, DVTs, strokes (probably from cerebral vasculitis) and was treated with high dose steroids (100mg/d) when needed. A team of rheumatologists, neurologists, cardiologists and vascular specialists should be able to treat you appropriately but they must be willing to talk to each other and plan treatment as a team. ABDA is a foundation that provides support for Behcets patients. I would check that out. Good luck and stay well!