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Anyone been diagnosed with CIDP? It's very rare

Autoimmune Diseases | Last Active: Oct 7 6:02pm | Replies (153)
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@kgitti

73 age here. Yes I was diagnosed in late 2019/early 2020. Then 3 years of twice weekly IVIG and steroids and then weekly SCIG Hizentra and occasional steroids since for late ups.
Not an easy battle but it can, in my experience, achieve a halt in the progress of the disease and with PT etc. get some limited progress.
I have a good life with a lot of effort, good doctors and family support.

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Replies to "73 age here. Yes I was diagnosed in late 2019/early 2020. Then 3 years of twice..."
danmccann63 | @danmccann63 | May 10 8:15am

Living with it sucks but what really makes me irked, is that many times, I have to explain it to some doctors. I, like you, have had a pretty lucky and great life and family. Makes “dealing” with it easier…

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