This hurts So bad!!!

Does anyone have this condition?

Hello @trigeminalwoman38, and welcome to Connect. I moved your discussion to an already active discussion called Trigeminal Neuralgia*. Here you will meet other members who also have TN. I recommend reading through the long discussion that has already taken place and jump in to the conversation! If you are replying by email, please hit the blue VIEW & REPLY button at the bottom of the email so that you can see the whole conversation taking place on Mayo Clinic Connect.

@trigeminalwoman38; I can't say welcome to this group b/c I wouldn't wish this condition on anyone. But I am glad you have found the others who suffer and understand your pain. Feel free to ask specific questions if you have them.

Hi trigeminalwoman38. I have this and I agree...I wouldn't wish it on anyone either! It's the worst pain I have ever had. Right now i think my meds must be working better, because I only have a few sharp pains, vs. the excruciating, sharp, shooting ones that last for 5-10 minutes. I was having the excruciating pains 20 + times a day. I am on carbamazepine . And Gabapentin. I also take 1/2 of a baclofen as needed. The meds take a week for me to work, and HATE the forgetfulness I experience as a side effect . BUT if it helps the Trigeminal nerve pain....ill take it!
I really hope you find a neurologist to help you. No one should have to experience this!

Trigeminalwoman38, Try HOT compresses as soon as you can. I can't touch my face at first, but holding the hot washcloth very close to my face, and changing it out every minute, or when it starts to loose heat, helps. Pretty soon, I can put the hot compress directly on my face. It's the ONLY thing that helps me. I still have to take the meds, but I do this for break through pain. I really hope you can find a good neurologist quickly to get some relief. So sorry you have this awful disease!

@reneewise50 Thank You very much, Its helping.

I’m new to this group too, I go to Cleveland February 20 for my TN I’ve had it for almost 2 years I’ve lost 40lbs as of now I too had a tooth pulled and 2 weeks later the pain started its awful I cry all the time my face swells and my eye, I have a 11 year old boy and I hate it for him , I’ve missed a lot of his games because of the pain and not feeling like doing anything, I have Lyrica to take but it makes me so dopey I hate it and it really doesn’t help me I was on Percocet and that helped for hrs at a time but now you have to go to a pain mngt to get pain meds and I don’t even feel like doing that so I have nothing pain meds right now! I will be glad to go to Cleveland, this is terrible that nothing can be done to make it go away for good ! I hope you find relief! I sleep in a recliner and hot rags on my face help !

Hello @bobbich

I see that this is your first post on Connect and I would like to welcome you. I am a volunteer mentor with Connect. I see that you will be going to Cleveland Clinic this month to get some help with TN pain. This sounds terribly uncomfortable! I do hope that you can find some relief.

From what I can understand, this started after you had a tooth pulled? Did your dentist or oral surgeon offer you any help or suggestions?

Connect is a great place to find help, support and encouragement. I look forward to hearing from you again.

Teresa

Hello @bobbich

As I recall from your first post, you had an appointment on 2/20 at Cleveland Clinic regarding your TN pain. I hope that you were able to get some help.

I hope you are either feeling better or have a plan in place to deal with this pain. I would enjoy hearing from you again.

Teresa